Friday, November 26, 2010
Good News!
I went to the Dr. on Tuesday and had a great report. The new medication had brought the pressure down in both eyes to a normal level. For the first time, I was able to see 20/20 in both eyes (with glasses) and the best news of all....the Uveitus has completely gone away. That means no more white blood cells in the eyes and no more inflammation. Dr. P was very pleased at the progress I had made over the past six weeks. I was thrilled for the news. Now this means that he can begin to ween me from all medications. This part is a slow process as he doesn't want my eyes to rebound and get bad again. So I will continue on both medications for awhile longer. I go back Jan 4th for my next checkup and Dr. P said if my eyes are still good at that time he will begin to get me off the medication. So he thinks by spring I will be off! I am very excited for this news! The Uveitus and pressure are all under control and I am feeling like my old self again. Thanks for the prayers and for following me on this journey. The news came at a good time! I was able to enjoy Thanksgiving and now Christmas.
Saturday, November 20, 2010
Update on My Eyes
I went back to the Dr this past week. And good news is the Uveitus is 99% cleared up. My vision has improved greatly! I can now read books and magazines without straining my eyes. And was able to read more on the charts this time. So that was great news! The only down side was that the steroid drops that I am on or either the Uveitus has caused the pressure to increase more in each eye. I am now at a 36/26. At first, I didn't notice it but now with the increase, I'm starting to feel achy behind my eyes and around my forehead. I do not want to reach 40! That is the danger zone for pressure.
The Dr. has put me on a new drop to control and bring down the pressure and a lower dose steroid drop for the Uveitus. I go back in on Tuesday for a recheck on the pressure. I really hope this new medication brings the pressure down fast! There is no cure if the pressure stays up high and damages the optic never. So that being said, I am still a little on pins and needles until I get a clear report. I truly hope Tuesday is a good visit and then the following week as well. Lots of trips to the eye specialist lately and looks like many more to come. Whatever it takes to keep my vision! Dr. P and I are becoming good friends and this last visit was a bit better. We are starting to get each others sense of humor or lack there of, I should say. Ha! He sees patients with this all the time so at times his bedside manner is lacking. But we somehow manage to cover a good bit of ground and with each visit I'm becoming very educated on the eyes and this illness.
I think we have fixed the main issue (for now anyway) and now can just focus on the pressure. I want to be positive that this will go away soon, but I also want to remain realistic that this could be with me forever. I saw a patients file that has been seeing Dr. P for 16 years with this condition. Let's just say that it was larger than the Yellow Pages for NYC. That was such a reality check! He makes us carry our own files to the front as we check out.... So each visit it gets a little fatter. I pray that mine doesn't grow that large! My heart went out to the guy who has been seeing Dr. P since he was 2. He seemed quite happy and well adjusted. I hope to get to a better place. I get a little depressed each time I go back. I'm ready for a good report and clearance!
The Dr. has put me on a new drop to control and bring down the pressure and a lower dose steroid drop for the Uveitus. I go back in on Tuesday for a recheck on the pressure. I really hope this new medication brings the pressure down fast! There is no cure if the pressure stays up high and damages the optic never. So that being said, I am still a little on pins and needles until I get a clear report. I truly hope Tuesday is a good visit and then the following week as well. Lots of trips to the eye specialist lately and looks like many more to come. Whatever it takes to keep my vision! Dr. P and I are becoming good friends and this last visit was a bit better. We are starting to get each others sense of humor or lack there of, I should say. Ha! He sees patients with this all the time so at times his bedside manner is lacking. But we somehow manage to cover a good bit of ground and with each visit I'm becoming very educated on the eyes and this illness.
I think we have fixed the main issue (for now anyway) and now can just focus on the pressure. I want to be positive that this will go away soon, but I also want to remain realistic that this could be with me forever. I saw a patients file that has been seeing Dr. P for 16 years with this condition. Let's just say that it was larger than the Yellow Pages for NYC. That was such a reality check! He makes us carry our own files to the front as we check out.... So each visit it gets a little fatter. I pray that mine doesn't grow that large! My heart went out to the guy who has been seeing Dr. P since he was 2. He seemed quite happy and well adjusted. I hope to get to a better place. I get a little depressed each time I go back. I'm ready for a good report and clearance!
Trip to Cali
We made it home on Wednesday night from our trip to Cali. We had such a good flight there. Well, the flight was very long of course, but we lucked out and sat in the middle of two very nice young men. One of which I nicked named, the Baby Whisperer. You know those people who have a calming effect on kids..... Owen just loved this guy and smiled and giggled with him the whole trip. We made it to Cali and it didn't take too long to settle into our routine and get Owen sorted out from his jet-lag. I was very proud of him and considering all the changes he did so well. I never had to give him a sleeping aid. Although, on the way home by the 3rd hour I was going to, but I looked down and he had finally passed out.
It was so great to met and hold Aidan for the first time! And I determined very quickly that he's a real Mommies boy! And Mike is also one of those Baby Whisperer's! He definitely calms Aidan and Owen smiled and laughed each time he walked into the room. He thought Mike was very cool and would settle down for him. Poor Owen called every man he saw on the trip Dada. He even called Al Roker, Dada! So that gave us all a good laugh! I loved seeing Aidan and listening to all his tiny baby sounds. And you know, I had really forgotten Owen ever being that small. That's kinda sad!. Where does the time go? Why does it have to go bye so quickly? There was even one night when we adults sat over dinner and talked about discipline and parenting techniques. Boy did that make me feel old! Lol! And the reality hit that Owen is no longer a little baby. Anjoli referred to him as, Big Boy. And he really is, but that's a hard one to accept - just yet :)
Anjoli and I talked ourselves silly. We always try so hard to cram in so much! A week is never enough time. We had a good time making some wonderful food together! We drank great wine, talked about the boys, shared stories, dressed them in matching clothes, had a welcome home party for Aidan, and took walks and went shopping. It was so nice to have that time with her and I wish we lived closer. On the last day we made sure to get the boys together for their first photo shoot. The first of many to come! I can't wait to show them these pictures when they are older! I know they are going to be best buds! And when Owen and Aidan are bigger I hope they can spend long summers together!
And one of the best moments, was when Anjoli and I were in the kitchen talking and we heard chattering coming from the living room. We look over and see Aidan and Owen talking to each other. That was the sweetest thing! I wonder if they were saying, Boy I wish our Mommies would stop talking so much! Lol!
It was so great to met and hold Aidan for the first time! And I determined very quickly that he's a real Mommies boy! And Mike is also one of those Baby Whisperer's! He definitely calms Aidan and Owen smiled and laughed each time he walked into the room. He thought Mike was very cool and would settle down for him. Poor Owen called every man he saw on the trip Dada. He even called Al Roker, Dada! So that gave us all a good laugh! I loved seeing Aidan and listening to all his tiny baby sounds. And you know, I had really forgotten Owen ever being that small. That's kinda sad!. Where does the time go? Why does it have to go bye so quickly? There was even one night when we adults sat over dinner and talked about discipline and parenting techniques. Boy did that make me feel old! Lol! And the reality hit that Owen is no longer a little baby. Anjoli referred to him as, Big Boy. And he really is, but that's a hard one to accept - just yet :)
Anjoli and I talked ourselves silly. We always try so hard to cram in so much! A week is never enough time. We had a good time making some wonderful food together! We drank great wine, talked about the boys, shared stories, dressed them in matching clothes, had a welcome home party for Aidan, and took walks and went shopping. It was so nice to have that time with her and I wish we lived closer. On the last day we made sure to get the boys together for their first photo shoot. The first of many to come! I can't wait to show them these pictures when they are older! I know they are going to be best buds! And when Owen and Aidan are bigger I hope they can spend long summers together!
And one of the best moments, was when Anjoli and I were in the kitchen talking and we heard chattering coming from the living room. We look over and see Aidan and Owen talking to each other. That was the sweetest thing! I wonder if they were saying, Boy I wish our Mommies would stop talking so much! Lol!
Monday, November 8, 2010
Halloween Party
Owen's first Halloween was so much fun! Well it was more fun for James and I. Turns out 9 month olds don't really care a thing about it. Lol! He didn't mind his costume at all. So that was good. It was pretty comfortable for him and it gave us all a good laugh. We went with the duck since his favorite toy is a rubber ducky. I thought about putting a float around him, but I knew that wouldn't last. Maybe for only a picture or two and it wasn't worth torturing him anymore than we had to.
On Saturday he had about 16 of his playmates from Mom Group and their parents over for a party. It was a bit crazy, but enjoyable. A good taste for what baby-kid parties will be like in the future. But I was surprised at how smoothly it all went! All the kids had a blast playing together. Owen was just a bit overwhelmed and clingy since he got more shots on Friday. He was a little confused at all the people in the house and playing with HIS toys. We just wanted us to hold him the whole time. He finally came out of his shell at the last hour and played with his best playmates Grace and Abigale. He knows them pretty well now and he seemed to have fun with just a few babies. James was a good sport too and dressed up with me. No one knew who we were when they arrived. It was pretty funny! We jsut pulled this stuff from the closet. Big kids we are!
On Saturday he had about 16 of his playmates from Mom Group and their parents over for a party. It was a bit crazy, but enjoyable. A good taste for what baby-kid parties will be like in the future. But I was surprised at how smoothly it all went! All the kids had a blast playing together. Owen was just a bit overwhelmed and clingy since he got more shots on Friday. He was a little confused at all the people in the house and playing with HIS toys. We just wanted us to hold him the whole time. He finally came out of his shell at the last hour and played with his best playmates Grace and Abigale. He knows them pretty well now and he seemed to have fun with just a few babies. James was a good sport too and dressed up with me. No one knew who we were when they arrived. It was pretty funny! We jsut pulled this stuff from the closet. Big kids we are!
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